My name is Doug , Just had colectomy for UC

Posted by doug @doug, Mar 23, 2016

My name is Doug, I am grateful to have had a full colectomy just last month. ( I know that sounds crazy however in spite of all the suffering I am choosing gratitude for life rather than the alternative. After 5 years of receiving multiple treatments, drugs, and trying diet, exercise and stress reduction and as a last ditch effort I tried a one week water fast after which I was told by my surgeon that I was close to death…. My surgeon stated matter of factly that it was simply time to remove my colon. With her diagnoses I made peace with myself and said yes and was admitted to the hospital within an hour for what was to be a life saving surgery. In retrospect it probably would have been better to have had the surgery 5 years ago rather than bombarding my body with all the drugs and stress that goes along with IBD, However I really wanted to try everything possible to avoid surgery but after so many years it was time. At this point I have 2 additional surgeries to go… next will be the J- pouch surgery and then 6-8 weeks later the final “take down” surgery.
I am happy to share my experience with anyone who might be helped by my current journey…although sometimes it feels like it….. we are never alone.
Every day is a gift!
God be with you!
Doug

Interested in more discussions like this? Go to the National Crohn's/Ulcerative Colitis Support Group group.

I have just received the news that I need a colectomy.I have had ulcerative colitis for 46 years and have had colonoscopies every 2 years since my mid 20s.My UC is well controlled but changes in colon at this scope has led my doctor to say that we need my colon out. I am concerned about living with a bag and how this will change my life,I am a little in shock although I realize I am lucky to have avoided this for so many years.I would love to know from someone who has undergone this just wha it is like.

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@welsh54

I have just received the news that I need a colectomy.I have had ulcerative colitis for 46 years and have had colonoscopies every 2 years since my mid 20s.My UC is well controlled but changes in colon at this scope has led my doctor to say that we need my colon out. I am concerned about living with a bag and how this will change my life,I am a little in shock although I realize I am lucky to have avoided this for so many years.I would love to know from someone who has undergone this just wha it is like.

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Others will share their actual experiences however i found this resource to be quite helpful with many of the questions we encountered. http://www.ostomy.org/What_is_an_Ostomy.html
C

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@welsh54

I have just received the news that I need a colectomy.I have had ulcerative colitis for 46 years and have had colonoscopies every 2 years since my mid 20s.My UC is well controlled but changes in colon at this scope has led my doctor to say that we need my colon out. I am concerned about living with a bag and how this will change my life,I am a little in shock although I realize I am lucky to have avoided this for so many years.I would love to know from someone who has undergone this just wha it is like.

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wearing a bag takes time getting used to but after a while you’ll get used to a routine and can live life fairly normally. Has you doc said anything about a J pouch?
Hope all the best for you!

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Appreciate the info. Thank you,

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@doug thank you for sharing your story. I am happy to hear you feel you made the best decision for your body. Wearing a bag can definitely take getting used to, but it sounds like you are on a good healing path.

@welsh54 hearing that you need a colectomy must have been very difficult for you. Please share any comments or concerns you have throughout the process and we hope to be a helpful resource for you.

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@michelleibdsfmoderator

@doug thank you for sharing your story. I am happy to hear you feel you made the best decision for your body. Wearing a bag can definitely take getting used to, but it sounds like you are on a good healing path.

@welsh54 hearing that you need a colectomy must have been very difficult for you. Please share any comments or concerns you have throughout the process and we hope to be a helpful resource for you.

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Thank you Michelle!

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My son had a colectomy in 2014. He had Crohn’s so is now on Entyvio. But he is healthy and has adjusted very well to wearing a bag. I hope you are able to now live in freedom from your terrible disease!

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