SEEKING SPECIALIZED CARE / CELIAC DISEASE

Posted by user_ch16d55bc @ch16d55bc, Nov 26, 2015

SEEKING SPECIALIZED CARE / CELIAC DISEASE

I’m in desperate need of a Gastro doctor that “SPECIALIZES” in Celiac
Disease (treatment, monitoring)…Are there any in South Florida?
Rob…

Interested in more discussions like this? Go to the Celiac Disease group.

Let me try to help if i can; are you seeing a GI doc now? If yes what are you missing from that experience? What are the main symptoms you need help with?

Best
C

REPLY
@charles

Let me try to help if i can; are you seeing a GI doc now? If yes what are you missing from that experience? What are the main symptoms you need help with?

Best
C

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Hi Charles, thanks for your reply…I was diagnosed (by distal duodenum
biopsy) several years ago (at approx age of 55 / white male) with the
following pathology report: *(“Changes highly consistent with Celiac
Disease, including severe villous blunting, lymphocytic cryptitis and
increased lymphoplasmacytic infiltrate of the lamnia propia).” Positive for
Celiac Sprue markers.*..Despite following a strict gluten free diet, I
continue to suffer lymph pain under my left armpit, and on my left inner
groin, which radiates down my left leg to my left foot. I am positive that
this leg pain corresponds to my Ceiiac diagnosis, since the pain increases
whenever I inadvertently ingest foods that (I find out after the fact, may
have contained gluten, although they were labeled “gluten free)…I have
read that people with Ceiac should be monitored for Refractory Celiac
Disease II & Enteropathy Associated T- Cell Lymphoma, since diet alone may
not prevent ongoing damage of Celiac Diseas and malnutrition…However, I
am unable to find a Gastro who seems to know much about this subject matter
or who will put in the extra time and effort.

Rob.

REPLY

Hi @user_ch16d55bc, Dr. Leavitt at Gastro Health specializes in celiac disease. Learn more here: http://www.gastrohealth.com/?physicians=james-s-leavitt-md

REPLY
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