Five steps people living with autoimmune diseases can take to incorporate mindfulness and improve quality of life.
By Elizabeth Kirchner, CNP
Mindfulness is a buzzword that seems to be everywhere, but what does it actually mean? In the most basic sense, mindfulness is simply awareness. Being aware of some of the most fundamental aspects of our lives—our breathing or our surroundings, for example— can help us become aware of more-complex emotions and reactions.
Mindfulness can give us an outside perspective on any situation that is troubling us or requires our attention. The most important aspect of mindfulness is that it is nonjudgmental. When we focus on our breathing, for instance, we aren’t grading ourselves; we are just aware of the sensation of breathing. By practicing mindfulness we can train ourselves to simply be aware of any action or feeling without calling it good or bad, right or wrong. It simply is.
When we release ourselves from the burden of judging various aspects of our lives, we can relax and let go of the things we cannot change. This can lead to decreased stress and improve our quality of life, as well as conserve our mental and physical energy for the things we can change.
Practicing mindfulness can help patients living with autoimmune disease, specifically, manage the daily challenges of living with a chronic condition by offering valuable perspective and coping strategies that can help relieve physical and emotional stress.
Autoimmune diseases can be frustrating in innumerable ways. In some cases, patients may not appear sick, but they suffer from profound fatigue. Other autoimmune diseases may cause intermittent or chronic pain. Still others can cause disfigurement in the form of skin rashes, skin color or texture changes, or joint deformities. All of these symptoms and effects of autoimmune diseases are things that patients must find a way to cope with every day of their lives.
Learning to live with an autoimmune disease is oftentimes only half the battle; having to constantly explain yourself to loved ones, friends, employers, and others is another area of stress and frustration. Mindfulness can help with all of these issues. Realizing that you don’t have to explain yourself to everyone all the time, that you don’t have to be “cured” to live a full life, and that you don’t have to conform to anyone else’s expectations can be very helpful on the path to wellness.
In fact, research has shown the impact of mindfulness on quality of life for those living with chronic disease. In 2010 a social researcher from the Australian Institute for Primary Care published a literature review of 15 studies, revealing that patients who practiced mindfulness saw improvements in mental and physical health, well-being, and quality of life.1 The overall conclusion from looking at all of these studies was that while mindfulness cannot change an underlying condition, it can make it easier to manage and cope with many chronic diseases.
5 Ways to Engage In Mindfulness
Meditation can last for 30 seconds or 30 minutes; every little bit helps. If you are unsure of how to start, just choose something easy. Focus on a piece of fruit or a flower. Imagine that object in your mind. Picture everything about it: the texture, the color, the shape, the smell. Once you are able to keep your mind focused on a simple object without getting distracted, move on to something more complex, like an issue or a relationship. You will find it becomes easier the more you do it!
Elizabeth (Betsy) Kirchner, CNP, is a board-certified family nurse practitioner and the education and curriculum chair of the Rheumatology Nurses Society. She has worked at the Cleveland Clinic Foundation since 2000 in the Immunology Department, primarily with Len Calabrese, MD. Betsy provides care for patients with HIV, rheumatoid arthritis, vasculitis, lupus, and psoriatic arthritis, as well as other autoimmune inflammatory diseases. She has published several articles and has spoken at select national and international meetings.
The Rheumatology Nurses Society is a professional organization committed to the development and education of nurses to benefit its members, patients, family, and community. To learn more visit rnsnurse.org.